Canterbury DHB

Context

Reporting Data to International Registries

Transplant data is submitted to the international registries CIBMTR and ABMTRR at 100 days, 6 months and annually. Follow up appointments should be booked as close to these time points as possible.

Please return completed form to BMT Coordinators - fax: 03 3641486

The assessment forms are designed to capture continuous post-transplant data with no overlapping time periods. The date of the last reporting period is provided on the form.

CIBMTR Disease response Criteria

Note: At any response level, if some but not all criteria are met, the disease status should be downgraded to next lower level of response.

Karnofsky score

CIBMTR recognise performance status is a critical data field that has been determined to be essential for all outcome-based studies.

Patients who have received an allogeneic HSCT require a Karnofsky score to be documented in all clinic letters post-transplant.

Karnofsky Performance Status (5059)

GVHD

The CIBMTR captures GVHD data based on clinical grade and stage. GVHD scoring and grading is based on clinical severity, not histologic severity. Overall grading remains clinical and is based on the criteria in the forms below. Please document GVHD grade and stage at diagnosis, 100 day, 6 month, and annual follow ups.

GVHD - Acute GVHD Staging and Grading (239356)

GVHD - Chronic GVHD Grading (239357)

For a GVHD photo atlas please refer to the be the match 2018 long-term survival guidelines.

About this Canterbury DHB document (483132):

Document Owner:

Andrew Butler (see Who's Who)

Issue Date:

December 2016

Next Review:

December 2018

Keywords:

Note: Only the electronic version is controlled. Once printed, this is no longer a controlled document. Disclaimer

Topic Code: 483132